This is my cousin Skylar:
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He is 7 years old, lives in Sonoma, CA and was born with with Spinal Muscular Atrophy (SMA). SMA is a genetic disease that weakens the voluntary muscles associated with walking, crawling and swallowing. More info can be found here:
http://www.fsma.org/There is no current treatment for this disease, which is often fatal. So donations toward SMA research are the best way to combat it, and hopefully one day, find a cure.
This is where my hike fits in. Starting Thursday the 19th, I will be hiking through the Shenandoah National Park here in Virginia. During that time, with your help, I will be fundraising online for SMA.
Here's how it'll work: donations will be category-based, in that you donate a certain amount of money for every time something occurs in that category. I'll list them now, and once this part of my hike is over, I'll report back and let you know how many of each category happened.
Here they are:
Rainy Days. Donate an amount of money for each rainy day you think I'll have. The whole park should take me about 5-6 days to complete, and if it rains at all during the day, I'll count it as a rainy one.
Spills. How many times will I take a digger? I'd say I'm averaging about one spill every two or three days. This will be, of course, amplified by any rainy weather.
Snakes seen. I've seen a lot of black snakes (probably one every three or four days), and a couple days ago, I almost stepped on rattler. That would have been a fun day of limping and paralysis.
Liters of water pumped. I'd say I pump about 4 or 5 liters per day. More if it's hot.
Comments on my hiking skirt. Apparently it's a skirt, not a kilt. Whatever. But every so often I get questions from day-hikers about it, and it's level of comfort.
Money spent on snacks inside the park. I'm planning on packing out 5 days worth of food for the hike, but apparently there are several little stores and snack bars throughout the park that I know will tempt me with their hot, fresh food. So basically, you'd donate what I'll spend (I'll try to limit it though).
Longshots (heh heh):
These things are pretty unlikely, so you might as well bet the big bucks.
Pictures of bears. Many other thru-hikers have seen bears so far. I have not. But I've been told that if there's any place to see one, it's the Shenandoah's. So there's a decent chance of that happening, but could I snap a photo off in time? You be the judge. (I'd definitely post the photo).
Celebrities seen. This totally won't happen. So I think you should bet the farm.
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So place your bets in the comments section of this post, or if you prefer to do it privately, send me an email at ljoecks@gmail.com. You can give to more than one category, and more than one person can give to the same category. Please donate what you can!
example:
longshotfan said: I'll give $1 for each liter you pump, and I'll match whatever you spend on snacks inside the park.If you aren't the betting type, you can always donate per mile (there are 107 of them), or even give a flat amount. It's up to you.
The donation site is
https://secure.groundspring.org/dn/index.php?aid=21710I'll repost the link at the end of the hike.
Again, I'll keep track of all the categories as I hike, then tally them up at the end, and give you the totals (I should be done around the 23rd or 24th). You'll then write in whatever the donation comes to in the "other" box on the donation site.
Sorry if this is a bit complicated. If you have any questions, email me (ljoecks@gmail.com).
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By the way, I'm staying with my cousin Chris, his wife Karen, and their daughter Isabel in Richmond for a couple days to get some much needed rest. A big thank you to them for that! Also, I get to see game 6!
Double also, I think it's funny that everyone is so aghast at the sight of my beard. It's wicked common out here!